We would love to hear from you if you or a loved one suffers from NF1.  By adding patient profiles to our website, we will help others know that they are not alone.  These patient profiles will also serve to educate our donors about the impacts of NF1 and why we need to keep funding the research to find treatments or a cure.   Please fill out the form below and someone will contact you.


Are you or your child impacted by any of the following?
Dermal TumorsPlexiform TumorsScoliosisADHDLearning DifficultiesPainOptic GliomasBone Deformities

May we contact you for an interview?
YesNo