Thank you for telling your story!
Your Name (required)
Your Email (required)
Age of person with NF?
Where do you live?
When were you diagnosed with NF and what caused you to be diagnosed?
What kinds of doctors do you see and how often?
Describe any pain you experience because of NF
If you have plexiform tumors, how are they monitored? Have they caused pain/discomfort? Have you had surgery?
If you have an optic glioma, how is it monitored? Has it impacted sight? Have you had treatment?
If you have tumors on your skin, where are they? When did they appear? Do they cause pain/discomfort? Do they impact your life in other ways (social, etc)?
Please tell us anything else about how NF has impacted you and your family. Socially, economically, emotionally...
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