The Giorgio Foundation seeks to fund the research of pediatric neurofibromatosis 1 (NF1), a devastating genetic disorder which causes uncontrolled tumor growth. Referred to by some researchers as "the most common disorder you've probably never heard of," there are an estimated 2 million people suffering with NF1 worldwide.
Our Mission
100% of your donation goes towards research.
We’ve carefully structured our non-profit organization to ensure 100% of your donation goes directly to groundbreaking NF1 research. Without your generous support, this research ends.
Please help us continue this life saving research.
No child should fear their future.
A single gene. Our bodies hold 25,000 genes, but one is responsible for suppressing tumor growth. That gene is known as NF1. When that gene fails, it unleashes uncontrollable tumor growth.
No surgery, no treatment can stop it.
The Giorgio Foundation is working with researchers across the country to advance research in this field. Now there is hope
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Please join us Friday May 17th 2024 for A Disco Inferno in Harrison, NY
Please donate.
100% of your donation goes directly to groundbreaking NF1 research. Without your generous support, this research ends.
“Since Giorgio’s NF1 diagnosis at the age of five, each doctor’s appointment resulted in more questions than answers, and a real sense of helplessness. Founding The Giorgio Foundation has given us hope that through targeted research we will allow our child and many others a life free of disfigurement.”
- Erin Borzellino, Co-founder, The Giorgio Foundation
About NF1
We directly fund researchers specifically focused on NF1. Because there is no gatekeeper organization or “middle man,” we have the ability and flexibility to apply funds where they can do the most good.
Progression of tumor growth
Early Childhood
In early childhood, there are absolutely no outward signs of NF1.
Pre-Teen
As the child develops, NF1 begins to make its presence felt. This begins with a few discolored spots on the skin, called cafe au lait spot.
At this point, NF1 may begin to distort spinal and bone structure to the point children are unable to play.
Teens
When children are most emotionally vulnerable, NF1 begins to take a heavy toll.
Uncontrollable tumor growth begins on the face, skin, nerve tissue, and spine. Bone structure continues to erode.
Adulthood
Tumor growth continues, now entering more advanced stages. Optic nerves are a common tumor location, and blindness is a common concern.
One may begin to withdraw from society and relationships as the condition progresses.