No surgery, no treatment can stop it.
The Giorgio Foundation is working with researchers across the country to advance research in this field
Now there is hope…
Funding Highly Focused Research
We directly fund researchers specifically focused on NF1. Because there is no gatekeeper organization or “middle man,” we have the ability and flexibility to apply funds where they can do the most good.
Partnering with Proven Researchers
We partner with researchers that have a proven record of modeling NF1 and progressing existing research of the condition.
Driving Awareness and Empathy
We seek to bring NF1 into the light and help others understand NF1. We believe awareness is essential to empathy.
Our Documentary
see more from Dr Gutmann in our Video Library
Why we focus on dermal neurofibromas
From TLC’s hit show, Dr. Pimple Popper
The Physical Destruction
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Early childhood
In early childhood, there are absolutely no outward signs of NF1.
Pre-teen
As the child develops, NF1 begins to make its presence felt. This begins with a few discolored spots on the skin, called cafe au lait spots.
At this point, NF1 may begin to distort spinal and bone structure to the point children are unable to play.
Teens
When children are most emotionally vulnerable, NF1 begins to take a heavy toll.
Uncontrollable tumor growth begins on the face, skin, nerve tissue, and spine. Bone structure continues to erode.
Adulthood
Tumor growth continues, now entering more advanced stages. Optic nerves are a common tumor location, and blindness is a common concern.
One may begin to withdraw from society and relationships as the condition progresses.
Late adulthood
Disfiguring tumor growth extends to the entire body.
