No Child Should Fear Their Future.

A single gene.

Our bodies hold 25,000 genes, but one is responsible for suppressing tumor growth.  That gene is known as NF1.

When that gene fails, it unleashes uncontrollable tumor growth.

No surgery, no treatment can stop it.

Our Documentary

see more from Dr Gutmann in our Video Library

Why we focus on dermal neurofibromas

From TLC’s hit show, Dr. Pimple Popper

The Physical Destruction

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Early childhood

In early childhood, there are absolutely no outward signs of NF1.

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Pre-teen

As the child develops, NF1 begins to make its presence felt.  This begins with a few discolored spots on the skin, called cafe au lait spots.

At this point, NF1 may begin to distort spinal and bone structure to the point children are unable to play.

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Teens

When children are most emotionally vulnerable, NF1 begins to take a heavy toll.

Uncontrollable tumor growth begins on the face, skin, nerve tissue, and spine. Bone structure continues to erode.

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Adulthood

Tumor growth continues, now entering more advanced stages. Optic nerves are a common tumor location, and blindness is a common concern.

One may begin to withdraw from society and relationships as the condition progresses.

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Late adulthood

Disfiguring tumor growth extends to the entire body.

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Our Mission is to fund highly focused research into treatments or a cure for NF1.

This is how.

Funding Highly Focused Research

We directly fund researchers specifically focused on NF1.  Because there is no gatekeeper organization or “middle man,” we have the ability and flexibility to apply funds where they can do the most good.

Partnering with Proven Researchers

We partner with researchers that have a proven record of modeling NF1 and progressing existing research of the condition.

Driving Awareness and Empathy

We seek to bring NF1 into the light and help others understand NF1.  We believe awareness is essential to empathy.

Every child deserves childhood.

"Since Giorgio’s NF1 diagnosis five years ago, each doctor’s appointment resulted in more questions than answers, and a real sense of helplessness. Founding The Giorgio Foundation has given us hope that through targeted research we will allow our child and many others a life free of disfigurement.”

Erin Borzellino, Co-founder, The Giorgio Foundation